low-grade serous ovarian cancer Support Groups
Joining a support group can help people find connection and ease the isolation that often comes with a rare ovarian cancer diagnosis. It can also be a valuable source of information and support.
The LGSOC Initiative hosts two support groups on Facebook for people impacted by low-grade serous ovarian cancer – one for people living with LGSOC, and another for their carers, family and friends.
LGSOC Facebook Peer-Support Group
The LGSOC Facebook Peer-Support Group is a warm and welcoming group for anyone diagnosed with LGSOC. It’s a place where you can show up as your authentic self, ask questions and find people who can relate to what you are going through. The group provides support, information and encouragement to people with low-grade serous ovarian cancer.
The LGSOC Initiative hosts the group, and it’s moderated by volunteers who also have LGSOC.
Family, Carers and Friends Facebook Peer-Support Group
LGSOC impacts not just the person with a diagnosis, but also their carers, family and friends. People without a diagnosis can join this group to share their experiences and connect with others supporting loved ones with LGSOC.
The LGSOC Initiative hosts the group on Facebook, and it’s moderated by volunteers whose loved ones have been affected by LGSOC.
From our community
Joining this group has really helped me along my journey because at times it can be really lonely and it reminds me I’m not alone. We’ve become a community of women who provide support and I’ve made some really great friendships.
Community is so important and nobody should go through this disease alone. I’m really grateful to have met all of these women and for the safe space we have created.
Megan
We are not just a community in the club that nobody wants to join, we are an international family where no ocean or language is a barrier. Sharing our individual stories helps us to feel heard and understood. Sometimes that is all we need.
But then at other times, we need to find hope and reassurance, to discover other experiences to inform our own, to offer support to those who are really struggling. This is a safe space in which to do all of that.
Diane